I need answers and I need them quickly..
Noah's Cardiff Appointment- Went and I'm just as clueless! Monday 18th April, 11am. Food chart has been filled out, toilet chart has been filled out, A urine specimen has been collected and paperwork filled out and we are ready to go! 2pm: We get to Cardiff Children's Hospital, 2 Hours away from where we live. Within 10 minutes Noah has been weighed and has his height taken. He still weighs 18lbs 2oz.. He hasn't gained anything in 4 weeks! Nothing, not even an ounce. It's a bit soul crushing. It's hard to take in. Ultimately it's a knock in the teeth. We've seen him slowly decline this last month, to the point- He cannot poo on his own! He has to be physically helped and it ends up with lots of blood and tears! On the plus side, he is now 2ft 4 inches tall! He will be my little 6footer when he's older! We head back to the waiting room and within minutes his name has appeared on the screen for us to see his consultant. I will give it to thi...