Another Hospital Visit..

Another day.. Another day in hospital!

Monday 16th May and back in hospital. This time for something that is weird but possibly connected. A few days prior Noah became having pure white poo! His eating and drinking had gone down and he was being sick constantly. It was so weird and I didn't know what to do or who to phone.

I phoned my health visitor on Friday but she didn't pick up. So I waited out the weekend and phoned her again on Monday morning. She urged me to take Noah straight to the children's ward of our local hospital. We got dressed and went straight away with the concern if it being his Liver!

We got there at 11am, his obs were done and everything was fine except his weight.. a 2oz gain in 6 weeks!! Even his weight gain was going down. 

12pm Noah was taken for a blood test. This wrecked me, I had to cuddle him and pin him down whilst they wrestled with him. The poor thing was screaming so loud and I couldn't help. They managed to get a small drop but nothing more. I felt like screaming at the doctor to shove off and leave my poor defenseless baby alone but I knew he needed to have this done. It just hurt so much that I was scaring my child by holding him down and restraining him- Which he hates! With a passion. 

4 hours we waited for the results and nothing. The results said nothing. We were then sent home just as clueless as when we got there.
I had spent all day talking to people who have children with HD. .Seen as everyone is certain Noah has it and everyone is so angry that he is being made to wait months for a test that will help him and save his life if its gets worse.. Which it is already heading. 

People elsewhere was getting this test for the babies at less than a week old and having the surgery within a week.. Noah is now 4 weeks of being 1 and all we've had is 1 measly consultant appointment which was no help at all! I'm starting to lose hope and I feel like I am trying to win a losing battle!

All we ask for is this test to be performed before its too late?! Is that so much to ask? 

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